Survey report: Optimizing clinical decision pathways for rare cardiac diseases
As care delivery for rare cardiac diseases evolves, many health systems are working to establish more programmatic, systemwide approaches to recognition, diagnosis and management.
But fragmentation across clinical decision pathways remains a persistent challenge.
A December 2025 Becker's Healthcare survey, conducted in partnership with Alnylam, highlights how variation in identification strategies, unclear ownership of follow-up and inconsistent coordination across specialties continue to delay diagnosis and impact outcomes.
This report examines where care pathways break down and where leaders are focusing improvement efforts. Insights are informed by survey data from 100 cardiology and pharmacy executives, as well as perspectives from organizations including Houston Methodist and RWJBarnabas Health.
You will learn:
But fragmentation across clinical decision pathways remains a persistent challenge.
A December 2025 Becker's Healthcare survey, conducted in partnership with Alnylam, highlights how variation in identification strategies, unclear ownership of follow-up and inconsistent coordination across specialties continue to delay diagnosis and impact outcomes.
This report examines where care pathways break down and where leaders are focusing improvement efforts. Insights are informed by survey data from 100 cardiology and pharmacy executives, as well as perspectives from organizations including Houston Methodist and RWJBarnabas Health.
You will learn:
- Why identification strategies vary across cardiology, pharmacy and other specialties
- How unclear ownership of patient follow-up contributes to coordination gaps
- Where lack of standardized pathways leads to delayed diagnosis and inconsistent care
- The role of multidisciplinary alignment and provider education in improving outcomes
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