The burden of rare diseases: How to streamline treatment for complement-driven disorders

Thursday, February 24th, 2022 | 12:30 PM - 1:30 PM CT

Rare diseases can have a profound effect on patients, families and society. Two rare diseases — paroxysmal nocturnal hemoglobinuria and atypical hemolytic uremic syndrome — require patients to receive regular infusions for treatment

Using real-world data from the Premier Perspective Hospital Database, researchers calculated the annual time spent and loss of productivity associated with treatments for these diseases.

This webinar will outline researchers' findings and share how these complement-driven rare disorders affect health systems' inpatient and outpatient settings.

Learning points:
  • Living with a rare disease: PNH and Atypical-HUS
  • Economic considerations for PNH and Atypical-HUS
  • Inpatient real-world evidence generated from the Premier Perspective® Hospital Database


Deruelle Headshot - Molly Traverso

Dennis P. Deruelle M.D., F.H.M.

Executive Director of Hospital Medicine with American Physician Partners (APP)